There IS Something Wrong With Me!

I have an amazing family!  For the past 6 months, my husband has chauffered me to doctor appointment after doctor appointment without one complaint.  He repeated all my symptoms to each one of these doctors as I sat there many times incapable of remembering what day it was let alone what the heck happened the day before!  As we took our tour of doctors, some of the best in the country because Chris insisted on the best healthcare for me :)  , time and time again we were told that there was nothing wrong with me...tests were all negative.  I kept insisting that something was INDEED wrong.  No matter how many doctors told us differently, my husband always stood by my side.  He has been my rock, my soft place to land, my brain, my caretaker, my chef, my chauffeur, my nurse....oh how the list goes on.  He is my number one fan!  I am truly blessed to be married to such a wonderful man!
As we continue this long battle, he is fine tuning his nursing skills.  He may have found his new calling!  He gives me my medication each morning through my PICC line.  I hate it.  I am sad to report that I am not his best patient.  I don't know why.  I think I we just don't know what to expect with the treatment.  The doctor can't really tell us what will happen over the next 2 months.  We just have to play it by ear every day.  Well I'm a planner and that doesn't work for me!  All we really know is that the road will get much rougher before it gets smoother.  So I just have to continue to think positive and hope for the best.
On a brighter note....here's a good story!  The home health care nurse came out to the house for the first time yesterday.  She called me, asked me if I was going to come to the door.  What???  Ummm...ya!  She said well she's been knocking, and ringing the bell and noone answered.  She said she's at 1580 and our address is 1590 so I step outside thinking she is just next door.  Then she tells me what street she is on.  Turns out she is across town at my mom's house!  What the heck?!?!  I give her directions to OUR house.  Chris calls the home health care company to see what's going on.  They tell him that's the address my doctor gave them.  Well that is just crazy!  I call my doctor and ask them what address they have for me.  Turns out when I went in the other day, I put my mom's address down as my home address.  And this, folks, is why CHRIS is in charge!  Hahaha  I don't really notice how bad my brain is...they call it Lyme Brain...until I go out.  Clearly I don't get out much!  Being at home, in my safe place, I don't have to deal with many of these issues.  I'm not sure if that's a good thing or a bad thing!  Anyhow, too bad my mom wasn't home, she would have enjoyed meeting my nurse.  She would have invited her in for a cup of tea and a chat!
And then there's my mommy!  Today is her birthday!  She is a beautiful 39 year young lady!  :)  She is my best friend!  I think she's Chrissy's best friend too!  She is amazing!  She takes care of my babies when I can't.  I think they like that better anyhow...especially Connor!  He bribes her to stay all the time!  All he has to say is "I love you Mimi".  She's so easy!  Last weekend while Chris was at work, I woke up in the middle of the night terribly sick.  Brayden of course chose that night to be wide awake...of all nights!  I called my mom about 3am and she came right over.  She took care of me, got me settled in and stayed up the rest of the night/morning with my sleepless child.  She is just the bestest!  She will do anything for us...all we have to do is ask.  I love her!

I would like to tell my complete journey over the last 6 months now that we have actually put all the pieces of this giant puzzle together.  I will have to save that for another day.  A fundraiser has been started to help with the mounting medical costs.  I am so grateful for people's generosity!  Chris also started a Facebook group.  We will try to post some things about Lyme disease there too.  Until now, this is a disease that Chris and I knew nothing about.  Knowing what we do now, we want to shout it from the rooftops!  If you have time I would encourage you to go to the links below!

This is the link to the Fundraiser Page...
http://www.giveforward.com/helpjenfightlymedisease

This is the link to the Facebook Group Page for us...
http://www.facebook.com/?ref=tn_tnmn#!/groups/274086509356429/

This is a link to the documentary "Under Our Skin" about Lyme Disease.  It's a real eye opener!  It's on hulu.com and free to watch.
http://www.hulu.com/search?query=Under+Our+Skin&st=0&fs=null

This is a link with lots of great info on Lyme disease.
www.ilads.org

Thanks again for listening!